We were recently fortunate to get a replacement transmitter for Angelina’s Dexcom system. The warranty period on the transmitters is six months and we had her first once for just over 8 months (since January) when we decided to swap it out for the new, slimmer version. The old transmitter had been acting a little weird, but was generally still okay, but since the clock was ticking on the new warranty we decided it was time to swap them out anyway. That left us with an operable transmitter that’s clock was winding down in the diabetes supply cabinet. We also recently had a small part of plastic break off of her receiver and lost the usb port cover, which is something that is covered under warranty and scored us a nice new receiver yesterday. I sent her off to school with the new receiver today and an idea came to me… I’m going to wear her spare devices for the next few days.
So, this morning after she left for school I shot myself with a Dexcom sensor. I’ve worn a sensor before, shortly after we first got her Dexcom, but it was only for about 36 hours and then she decided that she wanted it back. Since we temporarily have a full extra system I will be able to wear the Dexcom for at least a full week (I could likely wear it longer, but I do have to send the receiver back to Dexcom since it was a warranty swap to avoid being charged $199). Since I was hooking up the Dexcom anyway, I decided to also put in a pump site – skin tac, tegaderm and all. And since we don’t have a spare pump lying around I just taped the tubing to the Dexcom receiver since I have to carry it anyway. This may seem like still not comparable to what Angelina has to carry with her, but when we are together I generally carry her Dexcom receiver anyway so now I will carry two receivers part of the time, while she carries 1 receiver and a pump part time, and then just the pump while I carry 2 receivers.
It’s not really the same as having Type 1. Because, yes, I’m attached to bionic parts with tubes and tape, but I don’t have to deal with the ups and downs of blood sugar. I will still be carb counting, because I do that already for Angelina, but I won’t have to actually bolus myself with insulin since my pancreas still kicks it out pretty well on it’s own. I will, however, be checking my blood sugar a few times a day since the Dexcom requires at least 1 calibration every 12 hours, but I won’t have to check before every meal or if I wake up in the middle of the night.
Wearing these devices will hopefully give ME a sense of awareness though. That sense of having things attached to me 24/7 like Angelina does and having to be mindful of that when I change clothes, take a shower, or walk past door knobs to make sure tubing doesn’t get caught and sites yanked out. I’ve placed both sites on my abdomen because I’m home alone and those were the only places I could reach easily on my own. I considered wearing the Dexcom on my arm like Angelina does, because it makes it visible. It makes diabetes visible and it causes her to get a lot of stares and people asking questions – sometimes it’s annoying, but it also starts a conversation about diabetes and every conversation about diabetes raises awareness. But, alas, I cannot reach the back of my arm on my own to place a sensor. So, my awareness will have to be here. In pictures